Lavanya’s Battle with MPS Type 1 and the Power of Early Treatment

In this video, Lavanya, a 23-year-old BSc student, shares her experience living with MPS Type 1, a rare genetic disorder that affects growth and cognitive development. Diagnosed with MPS1 in 2007, she has been receiving therapy through Sanofi Genzyme's India Charitable Access Program. The therapy has helped improve her heart and eyesight, slowing the progression of the disease. Lavanya enjoys activities like drawing, cooking, shopping, and making Rangoli, which help her maintain a sense of normalcy. She emphasizes the importance of timely intervention, stating that early treatment can enable patients with rare diseases to lead near-normal lives, bringing hope and a sense of right to every patient.