Siblings’ Fight Against MPS I: Latika and Mayank’s Story of Recovery

In this video, Latika Dua shares her personal journey with MPS Type 1, a rare genetic disorder that affects growth and cognitive development. Latika was diagnosed with MPS I in 2003 after noticing a bend in her backbone, leading to further tests and a diagnosis. Her sibling, Mayank, was also diagnosed with the same condition. Despite undergoing bone marrow transplants in 2004 and 2005, their condition showed little improvement, with ongoing issues such as corneal clouding, body pain, and joint stiffness. Financial and emotional struggles added to the challenges, but in 2008, they began receiving enzyme therapy through a charitable program, which significantly improved their condition. Now, 13 years later, both Latika and Mayank lead healthy, normal lives without pain or developmental issues.