When a Child Gets Autoimmune Type 1 Diabetes
Parent's experiences of stage 3 diagnosis of T1D.
Discover the real-life impact of autoimmune Type 1 Diabetes (T1D) through the perspective of Sigurd’s parents. In this testimonial, they share their experiences of missed early signs, the sudden shock of diagnosis, and the profound impact that T1D has had on their family life.
In this testimonial film, Sigurd’s parents reflect on how they overlooked signs of Sigurd developing autoimmune T1D, the moment of realization, the shock of diagnosis, how their lives changed overnight, and what earlier detection could have meant:
- Sigurd’s mother speaks candidly about the toll of constant glucose monitoring device alarms and the emotional strain on their other children.
- Sigurd’s father shares how his lived experience with autoimmune T1D helped them adapt to Sigurd’s diagnosis. He also shares his opinions about whether he would have wanted to know in advance that Sigurd was developing autoimmune T1D.
Part 1: How parents perceive the risk of their child developing autoimmune Type 1 Diabetes
Part 2: What it is like to discover that your child has autoimmune Type 1 Diabetes
Part 3: What it takes to cope with the shock of diagnosis and to adjust to life with autoimmune T1D
Part 4: Whether there is value in knowing early on if a family member is developing autoimmune Type 1 Diabetes
Part 5: Everyday life with autoimmune type 1 diabetes
Full video: When A Child Gets Autoimmune Type 1 Diabetes
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Understanding Autoimmune T1D & The Value of Early Detection
Autoimmune Type 1 Diabetes (T1D) can be detected through islet autoantibody testing years before symptoms appear.1-2 The video here explains how the condition progresses silently through presymptomatic stages, with beta cell destruction occurring long before symptom onset and clinical diagnosis.4-8
Real-life stories from people living with autoimmune T1D
The progression of autoimmune type 1 diabetes (T1D) is gradual, often detectable months or even years before symptoms arise.1–3 Through proactive screening, we can identify the condition well in advance.3 Meet our ambassadors living with autoimmune T1D and discover the risk factors to look out for when considering who to screen.
How should individuals with positive autoimmune T1D autoantibodies be monitored over time?
Individuals who screen positive for ≥1 autoimmune islet cell antibodies need periodic medical monitoring, which includes regular assessments of blood glucose and HbA1c levels. You can also educate them about symptoms of diabetes, diabetic ketoacidosis (DKA), and provide psychosocial support to prepare them for a possible clinical diagnosis for type 1 diabetes (T1D).1