Building Care webinar series
The Building Care webinar series is designed to deepen your understanding of the critical role a patient-centered, multidisciplinary approach plays in managing Fabry disease.
This series includes six webinars, each focusing on key aspects of therapeutic management.
International experts will provide insights on setting appropriate treatment goals, monitoring therapy progress, considering adjunctive treatments, and enhancing patient adherence to treatment and monitoring protocols.
Each webinar will present clinical scenarios to illustrate the importance of adjunctive treatments in improving patient survival, symptom relief, quality of life, and adherence to therapy.
This series is intended for medical professionals across various specialties involved in the care of patients with Fabry disease.
Management of chronic kidney disease: In this webinar chaired by Dr Politei, you will learn about the management of chronic kidney disease in patients with Fabry disease from Dr Ortiz and view two clinical case presentations delivered by Dr Vujkovac (Slovenia) and Dr Trimarchi (Argentina).
Read more here!Watch the webinar!
Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
Cardiologic management: In this webinar chaired by Dr Politei, you will learn about the management of cardiovascular manifestations in patients with Fabry disease from Dr Pieroni and view clinical case presentations delivered by Dr Pereira (Portugal) and Dr Mao (China).
Read more here! Watch the webinar!
Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
Management of pain and gastrointestinal symptoms: In this webinar chaired by Dr Politei, you will learn about the pathophysiology and management of neuropathic pain and gastrointestinal symptoms in patients with Fabry disease and view two clinical case presentations delivered by Dr Romani (Italy) and Dr Kalakatawi (Saudi Arabia).
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Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
Management of depression: In this webinar chaired by Dr Politei, you will learn about depression and mental health in patients with Fabry disease by Dr Ali and view two clinical case presentations delivered by Dr Laney (USA) and Dr Politei (Argentina).
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Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
Enhancing care quality and improving patient outcomes: In this webinar chaired by Dr Politei, you will learn about navigating the therapeutic landscape and role of personalized care in Fabry disease through a patient-first approach. The reasons underlying patient non-adherence to medication and possible tools and solutions to enhance adherence are also explored by Dr Kleinsinger.
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Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
Management of ERT infusions: In this webinar chaired by Dr Politei, you will learn about the management of enzyme replacement therapy (ERT) infusions and infusion-associated reactions by Dr Lai and view two clinical case presentations focused on practical management of ERT infusions delivered by Dr Kobayashi (Japan) and Dr Juan Ribera (Spain).
Read more here!Watch the webinar!
Note, when you press "Watch the webinar!" you are leaving our website and entering an external site - The Rare Diseases University. To access the content, you will need to create an account.
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Do you want to learn more?
Listen to the podcast KardiologKvarten here!
Note, KardiologKvarten is recorded in Swedish.
Fabrys sjukdom och biomarkörer
Lär dig mer om vikten av monitorering av biomarkör vid Fabrys sjukdom, av Dr. Albina Nowak och Dr. Ana Cabrita.
Social stigma vid Fabrys sjukdom
Lär dig mer om social stigma och livskvalitet vid Fabrys sjukdom, av Dr Juan Politei, Dr Bogart och Dr Al Jasmi.
Monitoring Matters Series
Denna webinar-serie "Monitoring matters", har tagits fram för att öka uppmärksamheten inom vården, om vikten av adekvat, multidisciplinär uppföljning av patienter med Fabrys sjukdom.
Fabry och njursjukdom
Lär dig mer om vikten av njurmonitorering vid Fabrys sjukdom, presenterat av dr Juan Politei tillsammans med dr Ortiz och dr Ouyang.
Fabry och hjärtsjukdom
Lär dig mer om vikten av monitorering av hjärtat vid Fabrys sjukdom, av Dr Juan Politei, Dr Maron och Dr Barriales-Villa.
